CAPE CLL Initiative

 
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Overview of CAPE

The Cancer Advocacy & Patient Education (CAPE) initiative aims to create a web-based library of best-practice information that providers in the CLL cancer space can give to their patients and caregivers at each point of interaction. This program is supported by funding from Pharmacyclics, an AbbVie Company and Janssen Biotech, Inc.

Our Mission

To improve patient experience from cancer diagnosis through the cancer trajectory with personalized education

Our Vision

Engage, inform, and empower newly diagnosed cancer patients utilizing a predetermined quality-of-life model to reduce distress and improve patient experience from diagnosis through the cancer trajectory.
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Related Links

Navigating Chronic Lymphocytic Leukemia (CLL): The Critical Importance of the First 90 Days
https://jhoponline.com/special-issues/navigating-chronic-lymphocytic-leukemia-cll-the-critical-importance-of-the-first-90-days

Navigating Chronic Lymphocytic Leukemia: The Critical Importance of the First 90 Days. Navigation Strategies to Improve Care
https://aonnonline.org/education/navigation-tools/navigating-chronic-lymphocytic-leukemia-the-critical-importance-of-the-first-90-days

Chronic Lymphocytic Leukemia (CLL) Publications for Patients, Caregivers, Healthcare Providers
https://aonnonline.org/images/resources/navigation_tools/CLL_FSAC_One_Pager.pdf

Physical, Psychological, Social, and Spiritual Well-Being of Patients with Chronic Lymphocytic Leukemia and Their Caregivers: A Scoping Review
https://www.jons-online.com/issues/2021/june-2021-vol-12-no-6/3811-physical-psychological-social-and-spiritual-well-being-of-patients-with-chronic-lymphocytic-leukemia-and-their-caregivers-a-scoping-review

 
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CAPE CLL Videos

Overview of Chronic Lymphocytic Leukemia (CLL)
Chelsea Passwater, DNP, RN, AGCNS-BC, OCN
Watch as our CLL clinical advisor dives deeper into defining CLL, the clinical staging systems developed for this disease, and the role navigators play in the patient’s treatment journey.
CLL: Watch and Wait Period
Nikki Barkett, BSN, RN, OCN
Listen in as our CLL clinical advisor examines the “Watch and Wait” period in CLL and impact navigation can have during this period.
The Role of Genetics in CLL
Chelsea Passwater, DNP, RN, AGCNS-BC, OCN
A look at understanding the complexities of mutations and cytogenetics in CLL, the role genetics plays in prognosis, and how navigators can educate their patients and caregivers.
Prognostics & Predictive Models in CLL
Nikki Barkett, BSN, RN, OCN
An inspection of prognostic and predictive tools in CLL, risk categories, and impact on the patient’s treatment plan.
Patient Criteria for Treatment in CLL
Chelsea Passwater, DNP, RN, AGCNS-BC, OCN
Our CLL clinical advisor examines indications for treatment in CLL for both symptomatic patients and asymptomatic patients as well as the navigator’s touchpoints during this phase.
CLL Treatment Journey
Nikki Barkett, BSN, RN, OCN
Our CLL clinical advisor dives into the different targeted therapies for CLL patients including oral oncolytics and the impact navigation has on adherence to treatment and the multidisciplinary approach to care.
Treatment Complications & Adherence Promotion Strategies
Chelsea Passwater, DNP, RN, AGCNS-BC, OCN
Take a look into possible treatment complications for CLL patients, barriers to adherence, and navigation strategies to improve compliance to treatment.
The Navigator’s Influence on Care Coordination for the CLL Patient
Nikki Barkett, BSN, RN, OCN
Watch as we examine the navigator’s influence on care coordination for the CLL patient with an emphasis on patient advocacy and shared decision-making.
Psychosocial Impact of a CLL Diagnosis
Nikki Barkett, BSN, RN, OCN
Explore the psychosocial effect of a CLL diagnosis including financial toxicity and quality of life and dive deeper into the navigator’s role in meeting the patient’s psychosocial needs.
Caregiver Impact of a CLL Diagnosis
Chelsea Passwater, DNP, RN, AGCNS-BC, OCN
Learn about the role of caregivers in the CLL treatment journey and the challenges they face including financial concerns and caregiver burnout. We also examine compassion fatigue and burnout in the healthcare community.
 

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