CAPE Patient Engagement & Implementation Evaluation Application
Thank you for your Letter of Intent regarding participation in an opportunity for interested sites to participate in the CAPE Patient Engagement & Implementation Evaluation Pilot Study supported by its principal investigators: Academy of Oncology Nurse & Patient Navigators (AONN+) and The Research Institute of Fox Chase Cancer Center.
The following provides an overview of the study, requirements of participant sites, and information to be submitted no later than Monday, December 21, 2020, at 5:00 pm EST to be considered for participation in the study.
Pilot Study Overview
When diagnosed with cancer, a patient and their family’s quality of life (QOL) is often impacted immediately. QOL includes physical, psychological, social, and spiritual aspects of a patient. Responses such as anxiety and fear after the initial phase of cancer diagnosis and treatment are predominant and can lead to a multitude of barriers exclusively related to QOL. QOL ultimately affects most aspects of a patient’s cancer-care experience, specifically comprehension, coping, and self-care decisions. To address QOL with high-quality care, it is essential to have extensive patient education covering the entire disease trajectory.
- The CAPE platform for newly diagnosed patients was developed based on extensive experience with patients with non–small-cell lung cancer (NSCLC) and vetting of patient education materials and organizations, and is designed to provide tailored information to patients who are between their cancer diagnosis and the start of first treatment. This is an opportunity to actively engage patients and caregivers by assigning them tasks relevant to their diagnosis, increase productivity, and allow patients to become more involved in their treatment decisions and trajectory, ultimately increasing their QOL. The impact of the CAPE program to facilitate shared decision-making and improve patient satisfaction and reduce anxiety are also impactful to QOL and will be explored with the utilization of this program. As part of this project, sites will have free access to the CAPE platform.
This multisite evaluation study will employ a mixed-methods approach using both qualitative and quantitative data to explore the perceptions and utilization of this comprehensive patient education platform on newly diagnosed NSCLC patients, provider attitudes toward the platform and genomic testing, and implementation of the tool in diverse clinical settings. These insights and findings will guide future efforts to introduce the CAPE platform in a broad array of oncology care.
- Explore patient and provider perceptions about the value and impact of the CAPE platform to educate NSCLC patients about their disease and genomic testing,
- Explore patient and provider perceptions about genomic testing related to treatment options,
- Facilitate shared decision-making and improve patient satisfaction and reduce anxiety,
- Identify potential barriers and solutions for implementation as part of practice in different oncology clinical settings, and
- Ultimately resulting in a dissemination and implementation guide for future scaling of the platform.
- Describe providers’ perceptions of the CAPE platform and the factors (using the Consolidated Framework of Implementation Research) that might affect its implementation in the future.
Two (2) pilot study participants will be selected within the following care delivery settings.
- 2 Commission on Cancer–accredited community-based cancer center programs
Overview of Pilot Study Program
Forty newly diagnosed NSCLC patients per site; 2 sites will be selected (rural & urban academic & community cancer centers)
Patient will be recruited to the study at their initial appointment by a nurse/nurse navigator
- Baseline survey to be completed
- Utilization of the CAPE platform for 6-8 weeks
- Participate in a follow-up survey
- Conduct online survey of the entire thoracic team
- Conduct virtual focus groups with medical teams
- Conduct a debriefing with thoracic team at end of project