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Overview of CAPE

The objective of the Cancer Advocacy & Patient Education (CAPE) initiative is to create a web-based library of best-practice information that providers in the lung cancer space can give to their patients and caregivers at each point of interaction. The objectives are:

  • To make the time between diagnosis and treatment as productive and meaningful as possible through interactivity and education to meet patients’ psychosocial needs
  • To improve communication and shared decision-making around diagnosis, testing, and treatment between the patient, caregiver, and the cancer treatment team
  • To ensure patient understanding of their diagnostic and treatment journey, individualized to their disease state

The CAPE program’s web-based platform will allow navigators and healthcare providers to deliver a personalized digital prescription to lung cancer patients and caregivers of cultivated, evidence-based, best-of-the-best resources based on their physical, psychological, social, and spiritual well-being needs to make the time between diagnosis and treatment as productive and meaningful as possible. By providing education, improving communication, sharing decision-making, and ensuring patient understanding through interactivity and personalized resources of the CAPE program, navigators and healthcare providers can engage, inform, and empower newly diagnosed lung cancer patients, resulting in reduced distress and an improved patient experience. The education platform will assist the identification of interventions or tools to improve quality of life throughout the disease process.

Related Links

Press Release: AONN+ Leaders Publish Research on National Platform
https://www.aonnonline.org/press/2904-aonn-leaders-publish-research-on-national-platform

Press Release: New Academy of Oncology Nurse & Patient Navigators’ Initiative Aims to Empower, Educate, and Improve Quality of Life for Lung Cancer Patients
https://www.aonnonline.org/press/2364-new-academy-of-oncology-nurse-patient-navigators-initiative-aims-to-empower-educate-and-improve-quality-of-life-for-lung-cancer-patients

Press Release: CAPE Initiative Led By Cedar City Nurse Navigator
https://ironcountytoday.com/cape-initiative-led-by-cedar-city-nurse-navigator-p410-165.htm

The CAPE Initiative: Developing Meaningful Educational Materials to Elevate Quality of Life for Patients with Lung Cancer
www.jons-online.com/issues/2019/july-2019-vol-10-no-7/2477-the-cape-initiative-developing-meaningful-educational-materials-to-elevate-quality-of-life-for-patients-with-lung-cancer

Physical, Psychological, Social, and Spiritual Well-being of Patients and Caregivers Following Lung Cancer Diagnosis: A Scoping Review
www.jons-online.com/issues/2019/august-2019-vol-10-no-8/2490-physical-psychological-social-and-spiritual-well-being-of-patients-and-caregivers-following-lung-cancer-diagnosis-a-scoping-review

Filling an Educational Void: AONN+ Announces Cancer Advocacy & Patient Education (CAPE) Lung Cancer Initiative
www.jons-online.com/special-issues-and-supplements/2019/best-practices-in-lung-cancer-november-2019-vol-10/2589-filling-an-educational-void-aonn-announces-cancer-advocacy-patient-education-cape-lung-cancer-initiative

  • Foundation for Lung Cancer
  • Lungevity
  • National Minority Quality Forum
  • Patient Advocate Foundation
  • EMD Serono
  • Takeda
  • Association of Community Cancer Centers
  • Cancer Support Community
  • Fox Chase Cancer Center
  • Merck Sharp & Dohme

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